So it was, officially, a terrible day.
First of all, they left me sitting in the waiting room for like 50 minutes. I finally went to the desk and said, "Look, I just had a stillbirth and I don't think I can handle the whole 'waiting room baby talk thing' any more so I am just gonna go." The secretary said she would check to see if I was next, which I was. So they move me back to a room where I wait another 15 minutes. By this time Judah is highly irritated (Halle went to work with daddy) and wants nothing more than to crawl around on the nasty medical floor.
Dr A. comes in (whom I've never met before). She was nice but it was strange since I'd never met her before. She asked me how I was doing and we went over that for awhile. She also told me that my initial blood work came back fine. Then, she told me that she had the autopsy results, which I WAS NOT prepared for. If I had known the autopsy results were in I would have made James come.
Anyway.
Two things came back on the autopsy. First, there was a stricture in the umbilical cord, close to where it's connected to the baby. I guess a stricture is an extreme narrowing in the umbilical cord. I looked this up online and came across a site that said MOST babies with strictures will be stillborn. Also, it seems like they may have familial recurrence. Nice.
Second. The cord was excessively long for Jeremiah's gestational age. It measured 57cm (30cm is normal for that age) and was very twisted.
The summary of the autopsy read like this:
"The excessively long cord, with increased twisting, as well as the stricture near the fetal insertion site at the umbilicus, are all likely interrelated and all of these would contribute significantly to impeded venous return of oxygen and nutrients through the umbilical vein, from the mother/placenta to the fetus. This aggregate of findings most likely explain intrauterine fetal demise occurring in this case. There appears to be some recurrence risk for excessively long cords and excessive twisting of the cord; genetic counseling is recommended."
Basically, they are still going to do a full blood workup on me 6 wks post delivery and are also referring me to a genetic counselor to talk about the likelihood of recurrence and any possible genetic reasons for what's happening. Who knows.
This is the worst day I've had since the hospital. I feel like the things that came back on the autopsy are not preventable, nor even evident, during pregnancy, which makes me feel like I won't have any more babies. And I just wasn't prepared for that result. James says it's just "NO for now. And we'll re-evaluate our options when we're ready to start considering it again." I'm mostly just angry, guilty, and unbelievably sad.
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5 comments:
Praying for you!!!
Sweetie I am praying for you. In ways I know how you feel. Love You, Kim
Kelly, James & family,
Please know you're in my thoughts and prayers every day. May you have peace and comfort that only God can give.
Thank you so much everyone. We feel the prayers . . .
Annette- so neat to hear from you again. How are you and your family doing??
Kelly,
I doing great. Please email sometime so we can chat. My email is jabertke@nktelco.net. We have a lot to catch up on. Please know you've been in my prayers daily and I'm hugging you from afar. Email me. Thanks!
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